Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
The Lord is calling so many of His little one homes. While I know that these children are now whole, completely healed by the Great Physician it still hurts. We have had three families loose little ones in the last week from our GFPD group. This disease sucks!
Please pray for the Grant family of the UK, as thier little boy passed away today.