October 31, 2010

Sunday 10/31/2010

So, last night our little guy suprised us! He rolled from his back to his belly, and we both missed it!!!!

Jeff and I were both in the room - Jeff was watching T.V. and I was working on thank you cards, and Ethan was playing on a blanket on the floor. He was on his back, I looked away, and then he was on his belly!!!

We were so shocked. We couldn't believe it! So, of course we spend the rest of the night staring at him hoping that he'd do it again, but of course he didn't.

Ethan has now rolled from his belly to his back 3 separate times, although he hasn't done it in several weeks, and from his back to his belly once, yesterday.

I know that I may not always be able to say this but --- "Take that PBDs! You aren't going to tell us what our kids can and cannot do."

October 29, 2010

Friday 10/29/2010

Great news from the doctor today! Ethan weighed in at an amazing 12 lbs. 1 oz. Way to go, big guy! Okay, so we know that isn't really a lot for a 3 month old to weigh, but for us, its HUGE! Also, Dr. Smith feels that Ethan is doing so well that he doesn't need to see him for three weeks, not until his 4 month checkup! This is great!

Next week is going to be a busy week. Monday we'll have our regular monthly visit from the dietitian and an evaluation from the developmental/hearing specialist. Tuesday we are going to go to our first Baby Talk Times. Wednesday we are going to try to visit some friends here in town. Thursday we have another ABR and the hearing aid evaluation with our Audiologist in Springfield. Friday we are going to go to our first infant play group at Pershing Early Learning Center. I'll let everyone know how the week turns out. :)

Ethan is going to have a swallow study soon, since he's still having some difficulty with feedings, but that hasn't been scheduled yet. We'll keep everyone updated.

This week, please pray for the families of PBD kids everywhere. It's been a tough month for the PBD family, as two little ones are now in the presence of our Lord. Although we can take hope from knowing this, please pray for comfort and strength for the families who have lost their precious children.

"For God so loved the world that he gave his one and only Son,that whoever believes in him shall not perish but have eternal life."
-John 3:16

"Instead, they were longing for a better country—a heavenly one. Therefore God is not ashamed to be called their God, for he has prepared a city for them."
-Hebrews 11:16

"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away." (in Heaven)
-Revelation 21:4

October 22, 2010

Friday 10/22/2010

Ethan and I were blessed to get to spend the day with Jeff. He took a vacation day to spend with us. :)

We started out the day at the doctor's office for a weight check. Ethan weighed in at 11 pounds and 7 ounces. He gained just 5 ounces in the last 2 weeks, so Dr. Smith wants him to come back next week to check his weight again. We had just went to checking every other week.... We have to continue to monitor this because as with many PBD kids, eating/drinking and getting adequate calories/nutrition can be a huge challenge.

After the doctor's office we went to CAT to introduce Ethan to Jeff's co-workers. Ethan seemed to enjoy being the center of attention, until he had enough, and then it was time to go! :) We then made a quick stop at New Life Pregnancy Center, where I used to work, and saw the ladies there.

Then it was off to the pharmacy to pick up the prescriptions and then home.

In the late afternoon we got to visit with our friend Sarah B. who was home visiting from the Chicagoland area where she is serving God as a missionary and campus minister. Sarah, thanks for visiting and for all the prayers. I think Ethan enjoyed the visit from "auntie" Sarah. I know I sure did.

Please pray that Ethan will have a big appetite, that he will be able to eat without difficulties, and that he will continue to gain weight and grow properly.          

October 21, 2010

Thursday 10/21/2010

Today is going great! This morning Ethan had his monthly visit from his Physical Therapist. She is great with him and after playing/evaluating him today had great news - she said Ethan is making significant progress and that if she didn't know his background that she'd think she was looking at a "normal" 3 to 4 month old! YEAH, we are catching up!

She has given me some new exercises to work with Ethan at continuing to strengthen his neck muscles which will help him with head control. Increased head control should also help him with his eating (he still has some difficulty with this at times). He is also supposed to continue LOTS (ideally 2 hours a day) of tummy time.

The PT is also going to start the paper work with insurance in case Ethan gets a helmet. She said he still has a little bit of time before we would have to make a decision about the helmet and we will wait until he gets his hearing aids, so that way the helmet can be fitted around those.

I'm just so excited about the report from the PT. :) I know that Ethan may progress at his own rate, but progress is progress no matter what!

Way to go Ethan! Today's news was an answer to prayer. We love to hear good news.

Please continue to pray for Ethan's health and for him to continue to grow and develop. Please also pray for all the other PBD kids and that a treatment and cure will be found for these disorders.