Ethan fell in love with a Dino like this one in our church's nursery. My mom made sure that Ethan had one at home. We've been working on putting the balls in the holes for months. He has been getting better everyday. Tonight he decided to show us exactly how good he is!
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.
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