Skip to main content


Showing posts from December, 2013

Merry Christmas & Happy New Year from the Marshall Family

Dear Family & Friends,
Merry Christmas and Happy New Year from the Marshall family! We are once again praising God that we are wrapping up another wonderful year with Ethan. Two thousand and thirteen has been a year filled with many changes, challenges, and celebrations.
Last winter Ethan mastered cruising along the furniture and became a super speedy crawler who enjoyed pushing his toys from one room to another. He even began taking steps with his walker! We also reveled in the improvement of Ethan’s sleeping habits! Ethan received more powerful hearing aids to provide him with additional amplification and they appeared to make a great difference in Ethan’s ability to hear the world around him. Unfortunately, in the midst of the happiness, Ethan seemed to be continually battling illness and dehydration which led to many doctor appointments and the introduction of a GI doctor to our team.
On the first day of spring we found ourselves on the way to Carle hospital. Ethan was admitted …

Giving Tuesday

Have you ever heard of Giving Tuesday? I hadn't until today. You can learn more about this amazing movement on their website.

If you are feeling in a giving mood today, would you consider making a donation to the Global Foundation for Peroxisomal Disorders (GFPD). You can do so online or by mail. For more information visit

We are so blessed to be part of the GFPD family. We can't even imagine what our PBD-ZSD journey would be like without the support of other families who understand this diagnosis and how it changes live forever.

Thank you for your continued love, support & prayers,
Jeff, Pamela & Ethan

GFPD's Winter 2013 President's Letter

As most of you know, the Global Foundation for Peroxisomal Disorders (GFPD) has become our second family since Ethan's diagnosis and we are very involved with the organization. I feel honored to serve on the GFPD Board of Directors as the Registry & Support Group Coordinator. We are a completely volunteer ran organization and all of our Board of Directors are parents of children (living or deceased) impacted by PBD-ZSD.

I'd like to invite you to take a few minutes to read GFPD's Winter 2013 President's Letter and check out what we've been doing this year.