Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
I found out this evening that little Bella Bean left the arms of her parents for the arms of Jesus today. Please keep this family in your prayers. The fundraiser will go on as scheduled to help with outstanding medical bills and funeral expenses.