Skip to main content

Tuesday 1/11/2011

Last week was a pretty quiet week, but we have big news - Ethan reached a major milestone this past week - rolling from back to stomach.

He started doing this last Monday, and by Tuesday nothing could stop him! We had Grandma and Grandpa Marshall over to see Ethan's "new trick" on Tuesday evening and then Wednesday when Grammy Chambliss came to visit (and go with us to the ENT) she got to see him roll as well!

I must admit, he is still working at getting both arms free after rolling, one is usually stuck underneath him which frustrates him, but he's turned into a little rolling machine. We are so excited!

On Wednesday we went over to Springfield to see Ethan's ENT. Dr. Bauer is great and was very encouraged by how great Ethan looks. She told us to come back in six months for another checkup, but otherwise she didn't have any concerns at this time. Dr. Bauer and our audiologist are very proactive with Ethan and know that if his hearing loss progresses to a level in which hearing aids are no longer helpful that we will seek implants. I asked Dr. Bauer about this and she's successfully implanted kids as young as one year old.

Saturday we attended Ethan's cousin Anna's first birthday party. She had a princess party - she is so cute! We had a baby boom on my husband's side of the family in the past year. There were four cousins born from December 2009 to July 2010 - so, they will all be in the same grade! Talk about four crazy moms when its time for Kindergarten! :)

Today Ethan had his visit from his dietitian, Jen. He weighed in at an amazing 16 lbs. and 10 oz.! He is 27 inches long. His weight is now at the 50th percentile and his height is just above the 75th percentile. I think that Jen was almost as ecstatic as I was! Tomorrow, Ethan has physical therapy, so we’ll have to wait and see what she says.

Prayer Requests
-Pray for a PBD family whose second child left this earth to be with Jesus in heaven recently.
-Pray for all families impacted by PBDs.
Labels:

Comments

Post a Comment

Popular posts from this blog

"God Chooses Mom for Disabled Child" by Erma Bombeck

I don't think this is exactly how it works, but I had to share anyway. I believe with all my heart that God does not make mistakes, and although I will fully admit that it hurts my heart that any child is born (or develops) disabilities and/or life threatening illness, I know that God is sovereign and that He has a divine plan (even when we don't understand it!). I believe that God brought Jeff and I together and that He knew Ethan even as he was growing inside of me. While this is not the journey we would have dreamed of or chosen, and there are going to be times (and have been already) when we struggle, stumble and fall  it is our hope that in the end that we will bring glory and honor to the Lord.  God Chooses Mom for Disabled Child Written by Erma Bombeck Published in the Today Newspaper Sept. 4th, 1993 Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothe...
Post a Comment
Read more

Faces of Peroxisomal Biogenesis Disorders

This Saturday we are hosting the first annual Pancakes for PBD benefit.  All the proceeds will go to the Global Foundation for Peroxisomal Disorders to help offset the costs for our family and others like us to attend this summer's 2012 Family Support Conference in Orlando, FL.  We hope that this will become an annual tradition and allow us to help raise awareness and money for peroxisomal biogenesis disorders. Here are just a few of the faces of PBD. 
1 comment
Read more

Here we go again!

Yesterday, our family got to take another trip to the ER. Just a little after 7am, after I had fed Ethan breakfast and gave him his morning medications, he and I came into the living room to play before we had to get ready to leave for school. Ethan had 5 seizures, each lasting 10 to 15 seconds, back to back. Jeff had not yet left for work so I had him get the Diazepam, Ethan's rescue medication, and we gave it to him. The Diazepam is supposed to stop the cluster seizures, but it didn't. The seizures continued and didn't show any signs of stopping so the three of us packed up and headed off to the ER. By the time we arrived at the ER the drowsiness that is a side effect of the Diazepam was very evident, and although Ethan wasn't sleeping, he was definitely out of it. He had another small seizure shortly after we got to the hospital while we were being checked in. Once again his vitals were monitored and blood taken. The doctor spoke on the phone with our neurologist...
Post a Comment
Read more