Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
Ethan isn't feeling so good. He started to seem like he was getting a cold on Wednesday morning and got worse throughout the day and evening. Yesterday morning we headed out in the cold snowy conditions to the doctor's office. He's now on antibiotics, which should hopefully get him feeling better soon. He seemed to sleep much better last night.
-Pray that Ethan's cold will not progress into anything more serious.
-Pray for the other PBD kids who are battling illness - it's so tough on our kids.