Thanksgiving 2012

I am so thankful that today we are celebrating our third Thanksgiving with Ethan. I remember all too well when we weren't sure if we'd get more than 1 Thanksgiving, Christmas, or even a first birthday.
 
While the reality of Ethan's PBD-ZSD diagnosis never leaves my thoughts, and everyday is a struggle for Ethan to learn and try to do things that so many others take for granted, I know that I am blessed to still be able to hold, snuggle and love on my sweet boy. The Lord is the author of Ethan's story and it keeps unfolding one day at a time. Only He knows how it will all end.
 
We headed over to Jeff's parent's house for Thanksgiving with his side of the family. It is the first holiday since Jeff's grandmother has passed away. While we know that she is in heaven with the Lord, it was still hard to not having her with us.
 
Ethan learned how to play the piano all by himself today!



 
Ethan didn't want to eat anything today. He wouldn't even open his mouth for lunch and wouldn't really drink anything either. So after lunch we went out in the beautiful weather. Ethan "walked" in his walker and then swung in the swing.




 
Since Ethan wasn't eating, drinking, or napping we had to cut the visit with family short and head back home. Thankfully Ethan took a nap and when he woke up we got some medicine and a little bit of his milk (Bright Beginnings Soy Pediatric Drink) in him.
 
Please continue to pray for us as we battle Ethan's eating and drinking on a daily basis. It can be very frustrating when something that is supposed to be so easy for a child to do is so hard. He seems to have no desire to eat or drink for the most part and is still very aversive to his high chair. Jeff holds him for medicine and meals at night, but during the day it is a real struggle for me to do meds and meals all by myself. Ethan ends up in tears and I'm almost there with him.
 
Thank you for your continued prayers.
 
Happy Thanksgiving from the Marshall family!


Comments

  1. Your post says it all. Yesterday, Papa Steve asked how many Thanksgivings we have had with our little guy and we all were quietly counting, because each day is a day of Thanksgiving with our Stephen. You are friends with me on facebook (Soupsandwich) so you can catch up on our journey there. Have a wonderful fall and a fantastic winter. We are both so blessed with our precious little guys.

    ReplyDelete

Post a Comment

Popular posts from this blog

Faces of Peroxisomal Biogenesis Disorders

#PauseForPBD -- October 5, 2017

2017 GFPD Conference Recap