The wait is over, well sorta....

The Cystadane (betaine) arrived this afternoon. Ethan will begin taking the medicine in the morning. Please pray for us - we are taking a huge leap of faith for Ethan and the future of all kids with PBD. Ethan is one of the first kids with PBD to take this medicine, we aren't sure that it will help, but they don't think it will hurt. It is scary to be one of the first.....


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