This year Ethan was a monkey for Halloween. We attended our church's "Eats Before Treats," and then headed over to Ethan's great grandparents' house to visit. We then headed home so Ethan could have some dinner. It was a great evening! Our little monkey! Daddy & Ethan at our church's "Eats Before Treats" Ethan and his cousin Grace visiting with their Great Grandparents.
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.