Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
After 8 days without drinking anything, Ethan must have finally gotten thirsty! This morning he drank 8 oz. of his soy pedisure from his bottle, took his medicine and ate his oatmeal for breakfast! It is a wonderful way to start our Saturday morning! We are praising the Lord this morning for this little miracle!