After 8 days without drinking anything, Ethan must have finally gotten thirsty! This morning he drank 8 oz. of his soy pedisure from his bottle, took his medicine and ate his oatmeal for breakfast! It is a wonderful way to start our Saturday morning! We are praising the Lord this morning for this little miracle!
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Global Foundation for Peroxisomal Disorders
Infantile Refsum Disease (IRD)
Neonatal Adrenoleukodystrophy (NALD)
Peroxisomal Biogenesis Disorder (PBD) - Zellweger Spectrum
Zellweger Syndrome
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