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The things we take for granted...

As you might imagine, my life is turning out much different than I had expected. I hope that I was never a person that took too much for granted, but I do believe that I am more thankful now than I was before Ethan came into our lives. I am also more aware of how much is taken for granted....

We are in the process of selling our house. Why move? We want a house that is more Ethan friendly. We want a house without stairs so that when he is able to walk with a walker or if he needs a wheelchair that our home will not be a hinderance to him. So as we began this process of looking for a different house we started with a long list of it can't have this....

NO Bi-levels
NO Two story homes
NO one story homes with large steps up to the house
NO one story homes with step ups or downs from one room to another
NO narrow hallways

All of these things seem like they shouldn't matter, but to a family who is uncertain about the future health and mobility of their child they are....

Sometimes I wish that I could take more things for granted, but that is no longer my life.... I notice things all the time that aren't accessible to people of any age with a disability or trouble with mobility.

After a lot of searching we have found a house. We've made an offer, continguent on the sell of our home, and it has been accepted. It is ranch home that is already ramped for a wheelchair! It needs some work, but I love it. Please pray that our home will sell so that we can be in the new one before winter!

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Here we go again!

Yesterday, our family got to take another trip to the ER. Just a little after 7am, after I had fed Ethan breakfast and gave him his morning medications, he and I came into the living room to play before we had to get ready to leave for school. Ethan had 5 seizures, each lasting 10 to 15 seconds, back to back. Jeff had not yet left for work so I had him get the Diazepam, Ethan's rescue medication, and we gave it to him. The Diazepam is supposed to stop the cluster seizures, but it didn't. The seizures continued and didn't show any signs of stopping so the three of us packed up and headed off to the ER. By the time we arrived at the ER the drowsiness that is a side effect of the Diazepam was very evident, and although Ethan wasn't sleeping, he was definitely out of it. He had another small seizure shortly after we got to the hospital while we were being checked in. Once again his vitals were monitored and blood taken. The doctor spoke on the phone with our neurologist...