An Answer to Prayer

We had a huge answer to one of our many prayer requests this morning. We have qualified for help with the experimental medicine for Ethan though the National Organization for Rare Disorders assistance program. We have to do some baseline blood tests before he starts the medicine but then he should be starting the medicine within the next couple of weeks! Since our insurance doesn't cover the medicine it would have been over $700 a bottle without this assistance.

We know that the medicine is not a cure for PBD. We aren't even sure if it will really help, but we are going to try. The hope and prayer is that it will help restore some of the peroxisomal function.

We are praising the Lord for this answered prayer! Now, to sell our house. :)


Popular posts from this blog

Faces of Peroxisomal Biogenesis Disorders

#PauseForPBD -- October 5, 2017

2017 GFPD Conference Recap