Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
I just want to say a big thank you to those of you who must have prayed for Ethan's eating! Tonight at dinner he at 2 or 3 oz. rice cereal, about a 1/2 oz. of green beans and 1 oz. of peaches. He was a hungry little hippo. :)