Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
Stayed up late last night reading "Heaven is for Real" by Todd Burpo, I just couldn't put it down! I have always believed heaven is real, but with Ethan's diagnosis, this book was a refreshing reminder of how great a God we serve and that truly "For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life." - John 3:16