Stayed up late last night reading "Heaven is for Real" by Todd Burpo, I just couldn't put it down! I have always believed heaven is real, but with Ethan's diagnosis, this book was a refreshing reminder of how great a God we serve and that truly "For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life." - John 3:16
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Global Foundation for Peroxisomal Disorders
Infantile Refsum Disease (IRD)
Neonatal Adrenoleukodystrophy (NALD)
Peroxisomal Biogenesis Disorder (PBD) - Zellweger Spectrum
Zellweger Syndrome
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