Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
Please pray for the Prince family from England. Their little Ellie left earth to be in heaven with Jesus today. Little Ellie suffered from the same disorder as Ethan and was born just about six weeks after Ethan was. You can read about Ellie's PBD fight on the blog that her mom wrote.