Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
Ethan got fitted for his helmet yesterday - traumatic event for all involved. Then I took him to the doctor, who said he tested positive for RSV. (Respiratory syncytial virus.) So, Ethan and I are quarantining ourselves here at home for the rest of the week - I'm calling today to cancel all of this weeks appointments.
Please pray that Ethan will be able to kick this virus!