Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
Okay, so it wasn't actually ice cream. It was a dairy-free (coconut-milk based), vanilla flavored frozen dessert, but Ethan tried it for the first time today! He had a few little bites, I'm not sure he knew what to think.