Tonight, Ethan transitioned from his belly to sitting for the first time!!! Jeff saw it, but I missed it. Boo! Hoping we won't have to wait too long until Ethan shows off again.
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.
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