Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
Please pray for strength, comfort and peace for the Frisch family of New York. Their precious little boy left their arms here on earth for the arms of Jesus yesterday. Nickolaus is now healed forever of PBD and in heaven with the Lord. Nickolaus would have turned four next month. He has the same disorder as Ethan.