After visiting the park it was time for a bath! Baths have gotten alot easier now that Ethan can sit up. Jeff still puts on the swimming trunks so that he and Ethan can go "swimming," but it is so much easier! Ethan seems to enjoy baths now. He is even splashing himself - it is so cute!
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.