Last week sure was a busy one! Sunday Our church voted in our new pastor - Pastor Tracy will begin in January (this will let his kids finish the semester at their current school, get their house on the market and find a house here). The whole church is very excited! Sunday night was our annual church Thanksgiving meal. The food was wonderful and we always enjoy spending time with our church family. Monday Ethan had his 4 month pictures taken at JC Penney's. He sure didn't want to cooperate, and we only got one good smile out of him. :) Tuesday - Ethan's First Day with Hearing Aids Jeff took of work and headed to Springfield with us to the audiologist. Ethan's audiologists, Brittany and Anna, are wonderful - see picture :). They are so good with our little guy. Ethan didn't like it when Anna first put his hearing aids in, but once they were in he didn't seem to mind. Jeff and I were shown how to care for the hearing aids, the proper way to insert/take...
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.