Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
Just another day at school for Ethan! Before I got there to pick him up he walked across the room (est. 12 independent steps in a row)! We are so blessed by all of the teachers, therapists, and support staff at Valeska Hinton. This mom is praising the Lord for the strength and skills our little guy has regained and for those that he has achieved for the first time since we started Valeska in July.