Skip to main content

Merry Christmas & Happy New Year

Merry Christmas and Happy New Year from the Marshall Family


Dear Family & Friends,

Merry Christmas and Happy New Year from the Marshall family! This past year has been another year filled with challenges, celebrations, and changes and in the midst of it all, I simply did not make time to write our typical Christmas letter. One of the most significant changes in our lives this year has been our move from Decatur to Peoria. In April, Jeff accepted a new position with Caterpillar and he began working at the Mossville facility (just north of Peoria) at the beginning of June. Ethan and I were able to join Jeff in Peoria in mid-July and it seems like we are just now starting to slow down and settle in to our new life and routines here. We can’t thank you enough for your continued love, support and prayers. They are greatly appreciated.

It is our prayer that in 2015 we would grow closer to God and see Him working in our daily lives. We continue to hold onto His promises and know that He loves us and that we can trust in that love even when we don’t understand and can’t help but wonder “why.” Since we (humans) may never understand the “whys” of so many things in life this side of Heaven (and perhaps not even when we get to Heaven, since I’m not sure it will matter anymore) we are trying to remember to ask simply, “What next Lord?” and “How can we Glorify You?” each and every day.  Some days this is easier than others, but we know that He is with us and we are thankful for the promises and hope we find in Romans 8 and the comfort and encouragement that we find in the words of Jesus recorded in John 10:28-30, “I give them eternal life, and they shall never perish; no one will snatch them out of my hand. My Father, who has given them to me, is greater than all; no one can snatch them out of my Father’s hand.  I and the Father are one.” 

It is also our prayer that if you do not yet know this type of peace, that this Christmas season, as we celebrate Jesus’ birth, that you would open your heart and accept Him as your Lord and Savior.

With love and hope,

Jeff, Pamela & Ethan


If you would like to know more about how you can have a relationship with Jesus, please check out the following:




Comments

Popular posts from this blog

So much and so little to write about...

When I started this blog I don't think that I could have imagined a time would come in which months would go by without me writing. However, that is what has happened.

So much has changed over the last almost eight years since Ethan's birth and subsequent diagnosis with PBD-ZSD, yet at the same time so much hasn't. Unlike parents of typically developing children we find ourselves still parenting a child with complex medical needs who's developmental skills range anywhere from 9 to 18 months. Ethan still has PBD-ZSD, and right now his uncontrollable seizures are a major issue. We still fight PBD-ZSD the best we can each day with a basket full of medications and supplements and other medical interventions (feeding tube, cochlear implant, AFOs, etc), numerous therapies, school (which Ethan loves), and prayer. We advocate for him and all children and families impacted by PBD-ZSD and related peroxisomal disorders through our involvement in the Global Foundation for Peroxiso…

#PauseForPBD -- October 5, 2017

October 5th is a special day for our family as we celebrate #PauseForPBD, the annual awareness day for The Global Foundation for Peroxisomal Disorders (GFPD). [Jeff's birthday also happens to be October 5th but he doesn't seem to mind sharing it with #PauseForPBD day.] Our son, Ethan, is 7 years old and is one of less than 200 children, known to the GFPD, living worldwide with Peroxisome Biogenesis Disorder (PBD).  Ethan has a contagious smile and laugh, despite the fact that PBD has caused him to have severe cognitive and physical delays. Peroxisome Biogenesis Disorder (also known as Zellweger Spectrum Disorder), is a rare, genetic condition affecting multiple organ systems in the the body. PBD is generally fatal in childhood. As a parent, it is difficult to express the sense of loneliness and feelings of isolation that enter your life when your child has a rare genetic disease that most people have never heard or and has no cure.
However, #PauseForPBD, is a day that brings o…

Faces of Peroxisomal Biogenesis Disorders

This Saturday we are hosting the first annual Pancakes for PBD benefit.  All the proceeds will go to the Global Foundation for Peroxisomal Disorders to help offset the costs for our family and others like us to attend this summer's 2012 Family Support Conference in Orlando, FL.  We hope that this will become an annual tradition and allow us to help raise awareness and money for peroxisomal biogenesis disorders.

Here are just a few of the faces of PBD.