GFPD's Winter 2013 President's Letter

As most of you know, the Global Foundation for Peroxisomal Disorders (GFPD) has become our second family since Ethan's diagnosis and we are very involved with the organization. I feel honored to serve on the GFPD Board of Directors as the Registry & Support Group Coordinator. We are a completely volunteer ran organization and all of our Board of Directors are parents of children (living or deceased) impacted by PBD-ZSD.

I'd like to invite you to take a few minutes to read GFPD's Winter 2013 President's Letter and check out what we've been doing this year.


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