One of the local elementary schools is within walking distance of our house. We walked over there this evening to use their playground. Ethan loves walking outside! Walking in the grass is a lot more work for Ethan, but it is a good workout for him, and we can take his helmet off! :) At the end of the video you can see his "almost" steps. :)
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.