Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our PBD-ZSD journey.
Ethan and I took advantage of the beautiful weather today and spent some time "playing" at our neighborhood park. I hope you enjoy the pictures. Ethan seemed to have a great time, at least for a while. He HATED the grass!
Those are such cute pictures, even the ones of him crying. Too funny he doesn't like the grass. :) He is getting so big and is super adorable. Thanks for sharing.
Love the pictures. So sweet.
ReplyDeleteGod bless - Sue W.
Those are such cute pictures, even the ones of him crying. Too funny he doesn't like the grass. :) He is getting so big and is super adorable. Thanks for sharing.
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