Ethan turned 2 years old yesterday! We actually had two birthday celebrations. The first was on Saturday. We celebrated with my side of the family at my parents house. We had a combined birthday party for me, my cousin Mike, my Grandpa Troutt, my cousin Callie and Ethan. We were celebrating a combined 158 years! It was wonderful to spend the day with our family. There was tons of food, fun, and presents! Ethan even touched some cake this year and ate a few bites of coconut ice cream. Then last night we had another birthday party here at our house with Jeff's side of the family. Our house was full of little kids. Here is the best picture of the all the cousins that were at the party that I could get. Our family from the Chicagoland area were unable to make it to a Monday evening birthday party, so we missed them of course, but I think I can safely say that Miles and Cora would have had a blast with all the other cousins if they had been ab...
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.