Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.
You are very lucky because he is so cute and I bet so sweet! Love the pictures, he is getting so big. Hope you guys had a great day!
ReplyDeleteTake Care!