Another little one with PBD has left the earthly arms of his parents for the heavenly arms of the Lord. Please pray for the Bartosiewicz family of CT. Their little one Justin passed away today. He would have been two years old on Wednesday. Justin Bartosiewicz, November 16, 2009 - November 14, 2011
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.