Skip to main content

Friday 10/22/2010

Ethan and I were blessed to get to spend the day with Jeff. He took a vacation day to spend with us. :)

We started out the day at the doctor's office for a weight check. Ethan weighed in at 11 pounds and 7 ounces. He gained just 5 ounces in the last 2 weeks, so Dr. Smith wants him to come back next week to check his weight again. We had just went to checking every other week.... We have to continue to monitor this because as with many PBD kids, eating/drinking and getting adequate calories/nutrition can be a huge challenge.

After the doctor's office we went to CAT to introduce Ethan to Jeff's co-workers. Ethan seemed to enjoy being the center of attention, until he had enough, and then it was time to go! :) We then made a quick stop at New Life Pregnancy Center, where I used to work, and saw the ladies there.

Then it was off to the pharmacy to pick up the prescriptions and then home.

In the late afternoon we got to visit with our friend Sarah B. who was home visiting from the Chicagoland area where she is serving God as a missionary and campus minister. Sarah, thanks for visiting and for all the prayers. I think Ethan enjoyed the visit from "auntie" Sarah. I know I sure did.

Please pray that Ethan will have a big appetite, that he will be able to eat without difficulties, and that he will continue to gain weight and grow properly.          
Labels:

Comments

Post a Comment

Popular posts from this blog

"God Chooses Mom for Disabled Child" by Erma Bombeck

I don't think this is exactly how it works, but I had to share anyway. I believe with all my heart that God does not make mistakes, and although I will fully admit that it hurts my heart that any child is born (or develops) disabilities and/or life threatening illness, I know that God is sovereign and that He has a divine plan (even when we don't understand it!). I believe that God brought Jeff and I together and that He knew Ethan even as he was growing inside of me. While this is not the journey we would have dreamed of or chosen, and there are going to be times (and have been already) when we struggle, stumble and fall  it is our hope that in the end that we will bring glory and honor to the Lord.  God Chooses Mom for Disabled Child Written by Erma Bombeck Published in the Today Newspaper Sept. 4th, 1993 Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothe...
Post a Comment
Read more

Faces of Peroxisomal Biogenesis Disorders

This Saturday we are hosting the first annual Pancakes for PBD benefit.  All the proceeds will go to the Global Foundation for Peroxisomal Disorders to help offset the costs for our family and others like us to attend this summer's 2012 Family Support Conference in Orlando, FL.  We hope that this will become an annual tradition and allow us to help raise awareness and money for peroxisomal biogenesis disorders. Here are just a few of the faces of PBD. 
1 comment
Read more

Here we go again!

Yesterday, our family got to take another trip to the ER. Just a little after 7am, after I had fed Ethan breakfast and gave him his morning medications, he and I came into the living room to play before we had to get ready to leave for school. Ethan had 5 seizures, each lasting 10 to 15 seconds, back to back. Jeff had not yet left for work so I had him get the Diazepam, Ethan's rescue medication, and we gave it to him. The Diazepam is supposed to stop the cluster seizures, but it didn't. The seizures continued and didn't show any signs of stopping so the three of us packed up and headed off to the ER. By the time we arrived at the ER the drowsiness that is a side effect of the Diazepam was very evident, and although Ethan wasn't sleeping, he was definitely out of it. He had another small seizure shortly after we got to the hospital while we were being checked in. Once again his vitals were monitored and blood taken. The doctor spoke on the phone with our neurologist...
Post a Comment
Read more