So, last night our little guy suprised us! He rolled from his back to his belly, and we both missed it!!!! Jeff and I were both in the room - Jeff was watching T.V. and I was working on thank you cards, and Ethan was playing on a blanket on the floor. He was on his back, I looked away, and then he was on his belly!!! We were so shocked. We couldn't believe it! So, of course we spend the rest of the night staring at him hoping that he'd do it again, but of course he didn't. Ethan has now rolled from his belly to his back 3 separate times, although he hasn't done it in several weeks, and from his back to his belly once, yesterday. I know that I may not always be able to say this but --- "Take that PBDs! You aren't going to tell us what our kids can and cannot do."
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.