The Global Foundation for Peroxisomal Disorders (GFPD) will be celebrating five years old on October 5th. In honor of our founding day we have designated October 5th as #PAUSEforPBD, a day in which we ask our friends and family to join us in raising awareness of PBD-ZSD and more importantly showing support for the children and families affected by this disease - past, present, and future. The GFPD is offering a limited edition #PAUSEforPBD shirts that are available in youth t-shirt, adult unisex t-shirt, ladies (fitted) t-shirt, adult unisex long sleeve, and adult hooded sweatshirt styles. For more information on this fundraiser and/or to order your #PAUSEforPBD shirt, please visit: https://www.bonfirefunds.com/pauseforpbd .
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.