Have you heard the song "Bigger Than the Odds" by Matt Vollmar and The Great Romance? This song is inspired by baby Corey. You might remember that Corey is the first (and so far only) girl that has received flowers from Ethan. Corey was born with PBD-ZSD and only spent a very short time here on Earth before being healed forever in Heaven. Her picture is the last one displayed in the video. Corey's life and legacy of love and faith continue to impact people everyday. I consider myself blessed to know this amazing family and call them my friends. When you hear this song would you please consider praying for Ethan, our family, and all families who have been changed forever because of PBD-ZSD? Thank you!
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.