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| Ethan's beautiful curls. I'm pretty sure he won't grow anymore back. |
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| After the cut. I've got a few places I need to try to fix tomorrow, but hopefully I didn't mess it up too much. |
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.
I had to save Landen's first curls too! I cried for two days after cutting them off they were just so precious to me.
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