Skip to main content

Sedated MRI & ABR - November 20, 2012

3:30pm --  We made it -- so glad to be home!
7am - The radiology waiting room. Ethan has no clue how long of a day it will be.

 
We won't have MRI results for a few days, and even then it will just be from the ENT regarding the inner ear structure (we won't see the neurologist until January). The ABR went well, there has been some additional loss, but not enough to consider Ethan a cochlear implant candidate at this time. Recovery was hard -- lots of crying from our sweet boy and he was trying to remove the IV all by himself.
 
After being discharged from the hospital we headed over to audiology and they turned up his hearing aids for us, so he should be getting the amplification he needs. For those interested/curious where Ethan's hearing is now:
  • 500 Hz - 50 R/L
  • 1000 Hz - 65 R/L
  • 2000 Hz - 75 R/L
  • 4000 Hz - 70 R/L

Here is a picture to help explain where Ethan's hearing is without his hearing aids.

 
 

So, as you can see, without his hearing aids he is unable to hear most speech sounds. He may realize that we are talking to him, but just not be able to understand what we are saying, -- but that doesn't mean that we won't talk to him when he has his hearing aids out, etc.
 
Plus, it appears that he can still hear most of his louder toys even without his hearing aids, although we notice that when his hearing aids are out he typically puts one of his ears closer to the toys --- he is a smart boy! Thankfully, with his hearing aids on it can bump him back up into what they call the "speech bubble."
  
It has been a long day, and may be an even longer afternoon and evening. Thank you for all the thoughts and prayers.

Labels:

Comments

Post a Comment

Popular posts from this blog

"God Chooses Mom for Disabled Child" by Erma Bombeck

I don't think this is exactly how it works, but I had to share anyway. I believe with all my heart that God does not make mistakes, and although I will fully admit that it hurts my heart that any child is born (or develops) disabilities and/or life threatening illness, I know that God is sovereign and that He has a divine plan (even when we don't understand it!). I believe that God brought Jeff and I together and that He knew Ethan even as he was growing inside of me. While this is not the journey we would have dreamed of or chosen, and there are going to be times (and have been already) when we struggle, stumble and fall  it is our hope that in the end that we will bring glory and honor to the Lord.  God Chooses Mom for Disabled Child Written by Erma Bombeck Published in the Today Newspaper Sept. 4th, 1993 Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothe...
Post a Comment
Read more

Faces of Peroxisomal Biogenesis Disorders

This Saturday we are hosting the first annual Pancakes for PBD benefit.  All the proceeds will go to the Global Foundation for Peroxisomal Disorders to help offset the costs for our family and others like us to attend this summer's 2012 Family Support Conference in Orlando, FL.  We hope that this will become an annual tradition and allow us to help raise awareness and money for peroxisomal biogenesis disorders. Here are just a few of the faces of PBD. 
1 comment
Read more

Big Day - Field Trip to Bass Pro & Easter Seals Family Night at the Playhouse Children's Museum!

Ethan was so tired tonight. He had a busy day at school, which also included a field trip to Bass Pro to meet Santa and to go bowling, and then this evening we had our first visit to the Playhouse Children's Museum. More importantly though, here's a quick medical update: We are thankful to report that for the last two days no one has seen any seizures, so we are hoping and praying that this most recent increase in his medications might be making a difference. Our current neurologist (the one who is 2 hours away) called in a stronger dose for the diazepam. Ethan had been prescribed a 2.5 mg dose by the neurologist who saw him when he was hospitalized last month, but since it has not stopped the seizures the last 2 times it was administered, our neurologist calculated that a 7.5 mg dose is more appropriate for his weight.  So our hope is that the new dose will stop the cluster seizures, if they occur again. Obviously, the goal is to not have a need to use the...
Post a Comment
Read more