The Global Foundation for Peroxisomal Disorders (GFPD) is turning 4 years old! Would you please consider taking a moment or two to #PauseforPBDs on Sunday, October 5th in honor/memory of the individuals and families whose lives have been impacted by PBD? How will you pause? Ideas include: a balloon or lantern release , lighting a candle, reflecting during a moment of silence, saying a prayer and/or putting a note in your church's bulletin, asking for a love offering to be designated to GFPD, spreading awareness via social media, reaching out to a friend or family member impacted by PBD, making a donation to GFPD,etc. Will you join us as we #PauseforPBDs to remember, reflect, and raise awareness? To learn more about PBDs, visit www.thegfpd.org . To join the #PauseforPBDs event on Facebook, click here .
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.