Ethan's button - May 22, 2013

Ethan underwent the second part of his feeding tube surgery today. The doctor replaced the long tube (called a PEG tube) with a button. While we are very sad that Ethan is now completely dependent on his feeding tube (sometimes he will take a few bites of purees, but not often) we are very thankful that we have a way to provide our little boy the fluids, nutrition, and medicines/supplements his body needs in order for him to stay healthy and continue to grow and develop in his own time and way. We are very glad to be rid of the long tube and to have the button.

As always we had wonderful care from all the doctors and nurses who took care of Ethan. We had great nurses and were excited to see some familar faces and that several people remembered us and our sweet boy. A big thanks to a very special nurse/friend/fellow believer, Anne. We feel blessed that God placed you in lives.

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"God Chooses Mom for Disabled Child" by Erma Bombeck

I don't think this is exactly how it works, but I had to share anyway. I believe with all my heart that God does not make mistakes, and although I will fully admit that it hurts my heart that any child is born (or develops) disabilities and/or life threatening illness, I know that God is sovereign and that He has a divine plan (even when we don't understand it!). I believe that God brought Jeff and I together and that He knew Ethan even as he was growing inside of me. While this is not the journey we would have dreamed of or chosen, and there are going to be times (and have been already) when we struggle, stumble and fall it is our hope that in the end that we will bring glory and honor to the Lord. God Chooses Mom for Disabled Child Written by Erma Bombeck Published in the Today Newspaper Sept. 4th, 1993 Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothe...

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Big Day - Field Trip to Bass Pro & Easter Seals Family Night at the Playhouse Children's Museum!

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