My dad was in our area on Saturday, and was able to stop by for a visit. Ethan enjoyed playing basketball with his Grandpa Chambliss.
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.
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