Ethan's ability to sit without support has continue to improve over the last few months. He is now trying to transition out of sitting by himself. Usually this simply means that he falls over, but he has been getting a little bit more control recently. I caught this on video this morning:
Our son, Ethan, was diagnosed with peroxisomal biogenesis disorder - zellweger spectrum disorder (PBD-ZSD), a very rare genetic disease, when he was just four weeks old. There is no cure for PBD-ZSD and treatment is symptomatic. This is our family's journey.
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