Skip to main content

Ethan's IFSP Meeting

We had Ethan's one year review of services or his IFSP (Individualized Family Service Plan) back on August 31st. This meeting was to review the progress Ethan had made over the last six months and to set goals for the next six months to a year. It also is the time were we review all of the current services he receives through Early Intervention and if necessary make changes. I was very glad that Ethan's Physical Therapist (PT) and Developmental Therapist - Hearing (DTH) were able to attend the meeting along with our service coordinator. The PT and DTH have been with Ethan since the very beginning!

I thought the meeting was helpful. There are a few changes that were made but several of the services remained the same.
  • Occupational Therapy (OT) is increasing services from twice a month to weekly.
  • Speech is increasing services from once a month to weekly and will be working on feeding in addition to language development.
  • Developmental Therapist -Hearing (DTH) will continue weekly.
  • Physical Therapy (PT) will continue weekly.
  • Developmental Therapist-Vision (DTV) will continue twice a month.
  • Dietitian will continue once a month.
  • I spoke with the Mobility and Orientation gal on the phone prior to the meeting and she sent me some information. She won't be added to the team officially until Ethan is up and walking, but she said we could call if we had any questions.
I feel very blessed that we have a team who seems to truly care about our little man. They understand that he is unique and that he is writing his own book when it comes to how and when he will do things. The list of services might seem a little overwhelming, and I'll admit at times it is, but I am so glad that we have all of these services available and that I am fortunate enough to be home with Ethan, which makes all of the home visits by therapists much easier than if he was in daycare or at a sitter's house.

While there were many goals discussed at the meeting, I'll just share a few of my favorite. In the next six months we hope that Ethan will be able to:
  • Move forward on the floor (crawl or scoot).
  • Hold his own bottle (or sippy cup! if we can make that transition).
  • Pick up and self feed finger foods such as puffs, Cheerios, etc.
  • Increase use of sign language - signing "more," "food," "milk," regularly to communicate his needs/desires.
We've set some pretty high goals for Ethan, and I know that we will help him do his best to obtain them. He'll get there in his own timing and own way, and while I'd love to be able to, there isn't much I or any of the therapists can do to speed up "Ethan time." And it is our belief that "Ethan time" is perfect! The Lord created Ethan knowing exactly who he would be and when and what he would accomplish. We continue to seek his guidance and direction as we try to be the parents that Ethan needs and deserves. Please continue to pray for us as we do this on a daily basis.

Comments

Popular posts from this blog

"God Chooses Mom for Disabled Child" by Erma Bombeck

I don't think this is exactly how it works, but I had to share anyway. I believe with all my heart that God does not make mistakes, and although I will fully admit that it hurts my heart that any child is born (or develops) disabilities and/or life threatening illness, I know that God is sovereign and that He has a divine plan (even when we don't understand it!). I believe that God brought Jeff and I together and that He knew Ethan even as he was growing inside of me. While this is not the journey we would have dreamed of or chosen, and there are going to be times (and have been already) when we struggle, stumble and fall  it is our hope that in the end that we will bring glory and honor to the Lord.  God Chooses Mom for Disabled Child Written by Erma Bombeck Published in the Today Newspaper Sept. 4th, 1993 Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothe...

Faces of Peroxisomal Biogenesis Disorders

This Saturday we are hosting the first annual Pancakes for PBD benefit.  All the proceeds will go to the Global Foundation for Peroxisomal Disorders to help offset the costs for our family and others like us to attend this summer's 2012 Family Support Conference in Orlando, FL.  We hope that this will become an annual tradition and allow us to help raise awareness and money for peroxisomal biogenesis disorders. Here are just a few of the faces of PBD. 

Big Day - Field Trip to Bass Pro & Easter Seals Family Night at the Playhouse Children's Museum!

Ethan was so tired tonight. He had a busy day at school, which also included a field trip to Bass Pro to meet Santa and to go bowling, and then this evening we had our first visit to the Playhouse Children's Museum. More importantly though, here's a quick medical update: We are thankful to report that for the last two days no one has seen any seizures, so we are hoping and praying that this most recent increase in his medications might be making a difference. Our current neurologist (the one who is 2 hours away) called in a stronger dose for the diazepam. Ethan had been prescribed a 2.5 mg dose by the neurologist who saw him when he was hospitalized last month, but since it has not stopped the seizures the last 2 times it was administered, our neurologist calculated that a 7.5 mg dose is more appropriate for his weight.  So our hope is that the new dose will stop the cluster seizures, if they occur again. Obviously, the goal is to not have a need to use the...