Skip to main content

Friday 2/25/2011

Greetings again from St. Mary's hospital. We are spending another night here, hopefully the last one for a while.

Ethan had seemed to be doing better throughout the day and we were able to get him to drink more - half way through the day we switched from formula to pedilyte, and he seemed to take a bit more of that. We've since went back to formula, and he hasn't eaten much this evening.

He had his first breathing treatment just before 8pm tonight. Prior to this the doctors and nurses thought that he didn't sound bad enough, but he started weezing, so it was finally time to start the treatments (Jeff and I thought they should have started yesterday...). He will get them every four hours. Hopefully we will all be asleep for the next one. :)

I wanted to thank everyone who has been praying for our little guy and an special thank you to my fellow PBD moms who have been keeping in touch and have helping us advocate for Ethan. Thank you so much, Melissa, Shannon & Vicky! I feel very blessed to call you my friends.

We are praying that we'll be out of here sometime tomorrow. Please pray that Ethan will continue to fight this virus and that we've seen the worst of it.
Labels:

Comments

Post a Comment

Popular posts from this blog

"God Chooses Mom for Disabled Child" by Erma Bombeck

I don't think this is exactly how it works, but I had to share anyway. I believe with all my heart that God does not make mistakes, and although I will fully admit that it hurts my heart that any child is born (or develops) disabilities and/or life threatening illness, I know that God is sovereign and that He has a divine plan (even when we don't understand it!). I believe that God brought Jeff and I together and that He knew Ethan even as he was growing inside of me. While this is not the journey we would have dreamed of or chosen, and there are going to be times (and have been already) when we struggle, stumble and fall  it is our hope that in the end that we will bring glory and honor to the Lord.  God Chooses Mom for Disabled Child Written by Erma Bombeck Published in the Today Newspaper Sept. 4th, 1993 Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothe...
Post a Comment
Read more

Faces of Peroxisomal Biogenesis Disorders

This Saturday we are hosting the first annual Pancakes for PBD benefit.  All the proceeds will go to the Global Foundation for Peroxisomal Disorders to help offset the costs for our family and others like us to attend this summer's 2012 Family Support Conference in Orlando, FL.  We hope that this will become an annual tradition and allow us to help raise awareness and money for peroxisomal biogenesis disorders. Here are just a few of the faces of PBD. 
1 comment
Read more

A Family of 3 Once Again....

Jason Johnson is a writer of a blog and several books about fostering and adoption. One of his recent posts " Foster Care, Adoption, and Saying Yes to the Unknown " is a powerful and insightful look into the life of a foster parent. I'll be the first one to admit that when we said "YES" to two little girls who needed a family that we never thought that I'd be writing about the girls return to their biological parents. However, a little over a week ago our two foster daughters moved back in with their mom and dad. " Saying Goodbye To The Foster Care Child I Fell In Love With ," isn't exactly like our story, but there are a lot of similarities, and gives you a bit of a look into what we have experienced and are now experiencing. We are heartbroken and grieving. We miss them so very much, be we also know that they are loved and that they are happy. This summer as we prepared for this we spoke openly and often about the fact that you can be b...
Post a Comment
Read more