Skip to main content

Friday 10/29/2010

Great news from the doctor today! Ethan weighed in at an amazing 12 lbs. 1 oz. Way to go, big guy! Okay, so we know that isn't really a lot for a 3 month old to weigh, but for us, its HUGE! Also, Dr. Smith feels that Ethan is doing so well that he doesn't need to see him for three weeks, not until his 4 month checkup! This is great!

Next week is going to be a busy week. Monday we'll have our regular monthly visit from the dietitian and an evaluation from the developmental/hearing specialist. Tuesday we are going to go to our first Baby Talk Times. Wednesday we are going to try to visit some friends here in town. Thursday we have another ABR and the hearing aid evaluation with our Audiologist in Springfield. Friday we are going to go to our first infant play group at Pershing Early Learning Center. I'll let everyone know how the week turns out. :)

Ethan is going to have a swallow study soon, since he's still having some difficulty with feedings, but that hasn't been scheduled yet. We'll keep everyone updated.

This week, please pray for the families of PBD kids everywhere. It's been a tough month for the PBD family, as two little ones are now in the presence of our Lord. Although we can take hope from knowing this, please pray for comfort and strength for the families who have lost their precious children.

"For God so loved the world that he gave his one and only Son,that whoever believes in him shall not perish but have eternal life."
-John 3:16

"Instead, they were longing for a better country—a heavenly one. Therefore God is not ashamed to be called their God, for he has prepared a city for them."
-Hebrews 11:16

"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away." (in Heaven)
-Revelation 21:4
Labels:

Comments

Post a Comment

Popular posts from this blog

"God Chooses Mom for Disabled Child" by Erma Bombeck

I don't think this is exactly how it works, but I had to share anyway. I believe with all my heart that God does not make mistakes, and although I will fully admit that it hurts my heart that any child is born (or develops) disabilities and/or life threatening illness, I know that God is sovereign and that He has a divine plan (even when we don't understand it!). I believe that God brought Jeff and I together and that He knew Ethan even as he was growing inside of me. While this is not the journey we would have dreamed of or chosen, and there are going to be times (and have been already) when we struggle, stumble and fall  it is our hope that in the end that we will bring glory and honor to the Lord.  God Chooses Mom for Disabled Child Written by Erma Bombeck Published in the Today Newspaper Sept. 4th, 1993 Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothe...
Post a Comment
Read more

Faces of Peroxisomal Biogenesis Disorders

This Saturday we are hosting the first annual Pancakes for PBD benefit.  All the proceeds will go to the Global Foundation for Peroxisomal Disorders to help offset the costs for our family and others like us to attend this summer's 2012 Family Support Conference in Orlando, FL.  We hope that this will become an annual tradition and allow us to help raise awareness and money for peroxisomal biogenesis disorders. Here are just a few of the faces of PBD. 
1 comment
Read more

Big Day - Field Trip to Bass Pro & Easter Seals Family Night at the Playhouse Children's Museum!

Ethan was so tired tonight. He had a busy day at school, which also included a field trip to Bass Pro to meet Santa and to go bowling, and then this evening we had our first visit to the Playhouse Children's Museum. More importantly though, here's a quick medical update: We are thankful to report that for the last two days no one has seen any seizures, so we are hoping and praying that this most recent increase in his medications might be making a difference. Our current neurologist (the one who is 2 hours away) called in a stronger dose for the diazepam. Ethan had been prescribed a 2.5 mg dose by the neurologist who saw him when he was hospitalized last month, but since it has not stopped the seizures the last 2 times it was administered, our neurologist calculated that a 7.5 mg dose is more appropriate for his weight.  So our hope is that the new dose will stop the cluster seizures, if they occur again. Obviously, the goal is to not have a need to use the...
Post a Comment
Read more